Mejora de la calidad de vida de las personas con enfermedades crónicas a través de la prestación de servicios de atención médica

Libin Joseph; Devanshu Patel J; Sandeep Kumar C

doi:10.56294/saludcyt2023444

Autores/as

Libin Joseph College of Nursing, Teerthanker Mahaveer University, Moradabad, Uttar Pradesh, India https://orcid.org/0009-0006-5513-6337
Devanshu Patel J Department of Pharmacology, Parul University, PO Limda, Gujarat, India https://orcid.org/0000-0001-7612-0111
Sandeep Kumar C Department of Genetics, School of Sciences, JAIN (Deemed-to-be University), Karnataka, India https://orcid.org/0000-0003-0118-1221

DOI:

https://doi.org/10.56294/saludcyt2023444

Palabras clave:

Insuficiencia cardiaca crónica, profesionales sanitarios, enfermedad crónica, paciente, enfermedad pulmonar obstructiva crónica

Resumen

La evolución del sistema sanitario hacia un énfasis en la atención crónica puede ser más fácil de gestionar si el modelo de Wagner sirve de guía. Definimos las demandas sanitarias de los pacientes con enfermedades crónicas y las comparamos con los servicios que idealmente debería prestar un sistema sanitario centrado en el paciente, basándonos en componentes de este marco y en políticas sanitarias vinculadas a la atención centrada en el paciente. Este artículo ayuda a los lectores a comprender mejor los problemas singulares a los que se enfrentan los pacientes en circunstancias crónicas con su cuidador familiar mientras interactúan con el sistema sanitario y un proveedor de servicios. Para comprender mejor el reto al que se enfrenta la población que utiliza diabetes compleja, insuficiencia cardiaca crónica (ICC) o enfermedad pulmonar obstructiva crónica (EPOC), realizamos entrevistas con pacientes, cuidadores y profesionales sanitarios (HCP). Los pacientes indicaron una serie de demandas y objetivos sobre el calibre de sus interacciones con los profesionales sanitarios, y estas necesidades y deseos se transmitieron como preocupaciones. Existía la necesidad de: 1) una mejor comunicación e información por parte de los profesionales sanitarios; 2) unos servicios sanitarios más organizados con etapas más cortas para ver a los profesionales sanitarios; 3) apoyo para el autocuidado; 4) una mejor comprensión por parte de los profesionales de los requisitos para una atención holística y continuada; y 5) la participación del paciente y de los cuidadores en los Procesos de Toma de Decisiones (PDD). La política sanitaria está más estrechamente vinculada de lo que lo está ahora para dar cabida a las necesidades y preferencias de las personas con enfermedades crónicas y resolver sus problemas.

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Richardson CR, Franklin B, Moy ML, Jackson EA. Advances in rehabilitation for chronic diseases: improving health outcomes and function. BMJ. 2019;365.

Nouri S, Khoong EC, Lyles CR, Karliner L. Addressing equity in telemedicine for chronic disease management during the Covid-19 pandemic. NEJM Catalyst Innovations in Care Delivery. 2020;1(3).

Chudasama YV, Gillies CL, Zaccardi F, Coles B, Davies MJ, Seidu S, Khunti K. Impact of COVID-19 on routine care for chronic diseases: a global survey of views from healthcare professionals. Diabetes Metab Syndr Clin Res Rev. 2020;14(5):965-967.

Howard J, Fisher Z, Kemp AH, Lindsay S, Tasker LH, Tree JJ. Exploring the barriers to using assistive technology for individuals with chronic conditions: a meta-synthesis review. Disabil Rehabil Assist Technol. 2022;17(4):390-408.

Yoon S, Goh H, Chan A, Malhotra R, Visaria A, Matchar D, Lum E, Seng B, Ramakrishnan C, Quah S, Koh MS. Spillover effects of COVID-19 on essential chronic care and ways to foster health system resilience to support vulnerable non-COVID patients: a multistakeholder study. J Am Med Dir Assoc. 2022;23(1):7-14.

Hazazi A, Wilson A. Improving management of non-communicable chronic diseases in primary healthcare centers in the Saudi healthcare system. Health Serv Insights. 2022;15:11786329221088694.

Lucca JM, Kurdi S, Albaqshi B, Joseph R. Patient satisfaction with pharmaceutical care services for chronic diseases and medication adherence during COVID-19 in Saudi Arabia. Int J Pharm Pract. 2022;30(2):136-142.

Ryder M, Guerin S, Forde R, Lowe G, Jaarsma T, O'Neill M, Halley C, Connolly M. The perceived effects of COVID‐19 while living with a chronic illness. J Nurs Scholarsh. 2023;55(1):154-162.

Parkinson A, Matenge S, Desborough J, Dykgraaf SH, Ball L, Wright M, Sturgiss EA, Kidd M. The impact of COVID‐19 on chronic disease management in primary care: lessons for Australia from the international experience. Med J Aust. 2022;216(9):445.

Ajisegiri WS, Abimbola S, Tesema AG, Odusanya OO, Peiris D, Joshi R. The organization of primary health care service delivery for non-communicable diseases in Nigeria: a case study analysis. PLOS Global Public Health. 2022;2(7):e0000566.

Mahmud RA, Sultana M, Kundu S, Rahman MA, Mistry SK, Kamara JK, Kamal M, Ali MA, Hossain MG, Brooks C, Khan A. The burden of chronic diseases and patients' preference for healthcare services among adult patients suffering from chronic diseases in Bangladesh. Health Expect. 2022;25(6):3259-3273.

Bosetti C, Rognoni M, Ciampichini R, Paroni L, Scala M, d’Oro LC, Zucchi A, Amerio A, Iacoviello L, Ghislandi S, Odone A. A real-world analysis of COVID-19 impact on hospitalizations in older adults with chronic conditions from an Italian region. Sci Rep. 2022;12(1):13704.

Lignou S, Greenwood J, Sheehan M, Wolfe I. Changes in healthcare provision during covid-19 and their impact on children with chronic Illness: A scoping review. INQUIRY J Health Care Organ Provision Financ. 2022;59:00469580221081445.

Reif LK, van Olmen J, McNairy ML, Ahmed S, Putta N, Bermejo R, Nugent R, Paintsil E, Daelmans B, Varghese C, Sugandhi N. Models of lifelong care for children and adolescents with chronic conditions in low-income and middle-income countries: a scoping review. BMJ Global Health. 2022;7(7):e007863.

Jiang Y, Sun P, Chen Z, Guo J, Wang S, Liu F, Li J. Patients and healthcare providers' perceptions and experiences of telehealth use and online health information use in chronic disease management for older patients with chronic obstructive pulmonary disease: a qualitative study. BMC Geriatr. 2022;22:1-16.

Longhini J, Canzan F, Mezzalira E, Saiani L, Ambrosi E. Organizational models in primary health care to manage chronic conditions: a scoping review. Health Soc Care Community. 2022;30(3):e565-e588.

Lewinski AA, Walsh C, Rushton S, Soliman D, Carlson SM, Luedke MW, Halpern DJ, Crowley MJ, Shaw RJ, Sharpe JA, Alexopoulos AS. Telehealth for the Longitudinal Management of Chronic Conditions: Systematic Review. J Med Internet Res. 2022;24(8):e37100.

Alyousef M, Naughton C, Bradley C, Savage E. Primary healthcare reform for chronic conditions in countries with high or very high human development index: A systematic review. Chronic Illness. 2022;18(3):469-487.

Cohen DJ, Wyte-Lake T, Bonsu P, Albert SL, Kwok L, Paul MM, Nguyen AM, Berry CA, Shelley DR. Organizational factors associated with guideline concordance of chronic disease care and management practices. J Am Board Fam Med. 2022;35(6):1128-1142.

Mattison G, Canfell O, Forrester D, Dobbins C, Smith D, Töyräs J, Sullivan C. The Influence of Wearables on Health Care Outcomes in Chronic Disease: Systematic Review. J Med Internet Res. 2022;24(7):e36690.

Thompson DM, Booth L, Moore D, Mathers J. Peer support for people with chronic conditions: a systematic review of reviews. BMC Health Serv Res. 2022;22(1):427.

Howard J, Fisher Z, Kemp AH, Lindsay S, Tasker LH, Tree JJ. Exploring the barriers to using assistive technology for individuals with chronic conditions: a meta-synthesis review. Disabil Rehabil Assist Technol. 2022;17(4):390-408.

Salih MH, Wettergren L, Lindgren H, Erlandsson K, Mekonen H, Derseh L. Translation and psychometric evaluation of chronic Illness anticipated stigma scale (CIASS) among patients in Ethiopia. PLoS One. 2022;17(1):e0262744.

Joo JY, Liu MF. A scoping review of telehealth-assisted case management for chronic illnesses. West J Nurs Res. 2022;44(6):598-611.

Zhao S, Du R, He Y, He X, Jiang Y, Zhang X. Elements of chronic disease management service system: an empirical study from large hospitals in China. Sci Rep. 2022;12(1):5693.

O’Connor SR, Connaghan J, Maguire R, Kotronoulas G, Flannagan C, Jain S, Brady N, McCaughan E. Healthcare professional perceived barriers and facilitators to discussing sexual well-being with patients after diagnosis of chronic Illness: A mixed-methods evidence synthesis. Patient Educ Couns. 2019;102(5):850-863.

Ataie-Kachoie A, Tran J. Chronic disease management: Poly (ADP-ribose) polymerase inhibitors for treating ovarian cancer. Aust Pharm. 2022;41(5):44-52.

Livneh H. Psychosocial adaptation to chronic IllnessIllness and disability: An updated and expanded conceptual framework. Rehabil Couns Bull. 2022;65(3):171-184.

Adams J, McIntyre E, Frawley J, Lauche R, Broom A, Sibbritt D. Formal and informal healthcare behaviors of women with chronic Illness: A cross‐sectional analysis of 1925 women. Int J Clin Pract. 2019;73(4):e13343.

Buttorff C, Ruder T, Bauman M. Multiple chronic conditions in the United States. Santa Monica, CA: Rand; 2017.